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Treating chronic illness requires a lot of preparation from both the physician and the patient. In my opinion, more so on the patients part that the physician. As the patient, you need to know what you are getting yourself into, and how that treatment will affect your life as a whole, your relationships, personally, financially, socially, etc. You need to prepare for what is to come of your treatment, by reading about what is required to heal yourself and with the wonderful gift of the internet, you can also prepare yourself by reading about how others have fared in a similar treatments that you are preparing to go through.
Photo by Fabian Møller on Unsplash
Personal experience:
The first time I went through SIBO (small intestine bacterial overgrowth) treatment, I was not prepared and neither was I knowledgeable about what SIBO really was, what I was truly suffering from and what to expect through the treatments. Worst of all, I did not mentally prepare myself for the self-discipline it would require to maintain an intro-diet (SCD – specific carbohydrate diet) neither was I financially prepared for the tests, doctor’s visits and medications, and finally I was not truly prepared for how big of a toll the treatment would take on my body. I also did not take into consideration how my treatment and the effects of my treatment would have on my world.
Below are 4 ways I prepared for my second round of SIBO treatment that was coupled with h-pylori, candida and leaky gut treatment. The second time around, I took major steps before diving into the treatment, such as researching the cost of all the medications and treatments, gearing up to take on as many of my health concerns as possible and preparing to treat myself with more kindness as I go through the treatments.
What to do:
Prepare, prepare prepare
Mental
The first time I did a treatment for SIBO, I did not fully comprehend what the disease was and what the treatment would do to my body. The only information I had was what the doctor had told me, and I soon realized that it was not enough. Yes, she had gone over treatment (anti-microbials) and had told me that I would need to help my liver detox because when the bacterium die, they release toxins and rupture (die-off). She had also mentioned that I might get constipated and gave me a list of things to do to facilitate movement and had instructed me to increase my detox routine(which I already had one – stay tuned for a post about my detox routine). She also mentioned very lightly that after the treatment we would delve into an intro-diet that consisted mainly of soups that would help heal my gut.
Well, taking the anti-microbials was hard on my body and heavy on my relationships (below), while the into-diet+SCD was extremely difficult on my finances and my resolve.
Financial
Healing a condition that is not covered by insurance can be extremely costly. The first part to consider while preparing for treatment is the cost of testing to find the problem. In the case of SIBO, most conventional doctors do not have training in it and therefore do not treat it. When I spoke to my doctor about the findings of SIBO my Naturopathic doctor and I had discovered, she simply said that she did not have training on and it cannot offer any advice or prescriptions. This means that majority of tests and treatment options come out of pocket. The first time, I simply wanted to get better and spent a majority of my savings and monthly income on appointments, tests, prescriptions and the SCD diet (very costly). When the first set trial of triumphed and failed soon after treatment failed, I realized I needed to be smarter the second time around. The treatment my doctor and I decided to use was different from the first due to uncovering more health problems in addition to SIBO, but I decided to be smarter. I made a chart of the treatments and where I would find them at the best price and best quality.
Physical
Treatments are tough on the body. There is not way around this fact. Irregardless of the type of treatment one is going through, the body has to endure some kind of pain to get to the other side of health. Whenever I was in significant pain, fatigue or exhaustion, my mother would say, did you think this would be easy? Your body is currently a battleground and the bacteria are fighting for their lives and their land. Without a doubt, understand and acknowledge that you will be in some kind of discomfort, pain, fatigue etc etc.
Acknowledge that fact and give your body the rest, kindness, and the respect it deserves, hint: detox, detox, detox. While in treatment, avoid doing and eating things that will make it harder for your body to get better. Be kind to yourself and most importantly be kind to your body. The most important point for me was being patient with myself and body and giving it what it needs rather than what I want. Increase detox, decrease exhaustive and pain inducing activities and foods and keep in positive environments. Yes, this includes media and company, perhaps start with reducing the amount of news you watch and increase funny, lighthearted media and conversation.
Relationships
During treatment, maintaining your end of a relationship can be very difficult and daunting. I was exhausted, fatigued, always in pain and quite frankly, depressed, moody and very cranky. Everything was overwhelming and the most I wanted to do was stay in my room, blinds closed, in silence( perhaps with Netflix) and not be disturbed. But I needed to go to work and I needed to be alive and kind to myself and others. I simply drifted away from staying connected with friends and family who were not in my immediate presence. I just could not conjure the energy to reach out, or keep in regular contact.
The second aspect of relationships that was difficult was that my pain hurt my mother (my sole caretaker through the illness). When I was in pain, I could see the toll it took on her, the worry, concern and sadness was much harder for me to handle than my own personal pain. So I stopped sharing discomfort, and slight pains and would only share my pain or need of help when I truly could not handle it. Even with these efforts, my family still saw the discomfort and pain and determination to be OK when I was not.
It is important to understand that your illness will not affect you alone, it will affect the people that love you the most as well. So it is important to discuss treatment and possible reactions and how you might all deal with the situation. It is important to keep each other in the loop and do your best to keep each other in a positive mood. Treating chronic illness may be difficult and very stressful for everyone involved. So it is important that you all discuss how you to face the challenge of treatment together.
]]>1524 mistakes that slowed my SIBO healing game
https://blissfullyhealing.com/4-mistakes-that-slowed-my-sibo-healing-game/
Tue, 16 Jan 2018 11:47:48 +0000https://blissfullyhealing.com/?p=151 Majority of articles I have read and lectures I have listened to, stress how difficult it is to treat SIBO (small intestine bacterial overgrowth). Healing SIBO takes a lot more effort than we all assume, therefore we complain when we …
]]> Majority of articles I have read and lectures I have listened to, stress how difficult it is to treat SIBO (small intestine bacterial overgrowth). Healing SIBO takes a lot more effort than we all assume, therefore we complain when we realize we are in over our heads. I was in this boat a few months ago.I think that it is not that SIBO is difficult to treat, SIBO is simply different, not difficult. The American approach to ailments is “give me a pill and make it go away”. SIBO does not work like that because if affects not only the small intestine, but other organs around it and it causes a long list of symptoms that may not seem related to it. So it is important to get out of the mindset that healing SIBO is difficult, because we do get what we expect. Rather, we should have a serious game-plan of how to heal SIBO. SIBO requires a full scale game plan that includes healing protocols for all parts of the body that are affected by the condition. Photo by James Sutton on Unsplash
Personal experience:
I found out that I had SIBO in the beginning of 2017 after deciding to visit a naturopathic doctor because my regular doctor was not giving me answers to an increasing list of symptoms. All she did was order more and more blood tests and prescribe more and more medication each visit. When the naturopathic doctor found SIBO, I decided on antibiotics and followed those with 2 months of the fodmaps diet, an eating regimen that reduces the amount of foods that are purely absorbed in the small intestine. A few months later, I realized that my symptoms were returning and took another test that came back positive, only this time with both types of SIBO, methane and hydrogen. I realized that I needed to take a different approach to heal my SIBO. These are some of the mistakes I made the first time around.
1.Not prepared
This means a lot more than you may think. If you thought mental preparation, you are right, if you thought financial preparation you are right, if you thought physical preparation, you are right. The biggest mistake I made when starting to heal my SIBO was not knowing what exactly I am getting myself into. I was not prepared for the effort that it required, I was not prepared for how much money SIBO healing protocol would cost and I most certainly was not prepared for the physical effects my body had while I was trying to heal the condition. Preparation is key.
I was not prepared for the type of commitment SIBO healing was. I thought I would treat it once and it would go away. Little did I know, that this was a very long journey that required a lot of will and patience.
2.Get educated
The second biggest mistake I made was not knowing anything. I did not know what SIBO really was and what it really did to the body and what other parts of the body are affected by it other than the small intestine.
3.What else I had:
The third mistake I made was not know what other ailments I was suffering from. When I found out I had SIBO, I went head first in trying to heal it without considering that my body had more than one problem. I had issues with my health for a while and I very much wanted to find THE PROBLEM that would get rid of all the symptoms, discomfort and pain. When I realized that SIBO had most of the symptoms I was suffering from. I closed everything else off and focused just on SIBO. BIG MISTAKE. When SIBO was gone after the first treatment, I was better but not 100%, so began researching and testing what else I could have and BINGO, I found that I had H-pylori, which I have had a long history with, gastritis, and candida overgrowth. I then realized that each of these help the others thrive and to be able to fully heal my body, I needed to have a full fledged attack on all 4 at the same time and be mentally prepared for what is to come.
4.Listen to my body
The fourth mistake I made was not have a relationship with my body. I simply did not listen or understand my body. I pushed and pushed and pushed and even when my body would give me signals and signs, I simply did not know how to interact or interpret those signs. I had been in a state of pain and discomfort for so long, I simply did not know how to listen to my body’s communication. It had been complaining for so long, I had to learn to listen to it’s grievances. This only happened after finishing the first SIBO treatment and knowing what living a semi-painless life meant. During this short period of time without SIBO, I was able to start listening, learning and understanding when my body did not agree with something.
]]>1515 things that Helped Heal my SIBO
https://blissfullyhealing.com/5-things-that-changed-my-sibo-healing-game/
Tue, 16 Jan 2018 11:27:55 +0000https://blissfullyhealing.com/?p=150If you have been struggling with SIBO (small intestine bacterial overgrowth) or are beginning your SIBO healing journey, you must know how challenging it is to get a handle on the SIBO healing game. Healing SIBO is challenging, but I …
]]>If you have been struggling with SIBO (small intestine bacterial overgrowth) or are beginning your SIBO healing journey, you must know how challenging it is to get a handle on the SIBO healing game. Healing SIBO is challenging, but I found a few hacks that made my journey slightly easier.
Photo by Jamie Street on Unsplash
1.Get educated
My best tool at the moment is knowledge. Knowing what is going on inside my body makes it easier to understand what I need to do as I experiment my way to healing. You must take the time to understand what is going on. Understand what SIBO is, how it affects the body, what parts of the body is has truly affected in you, and how to heal all parts that are affected and not just the small intestine.
2. Finding out what else I am dealing with (H-pylori, candida, gastritis).
This was my brightest light bulb after I miserably found out I had SIBO again. I had various other symptoms along with my regular SIBO symptoms that made me feel worse than I did before I started SIBO treatment. Through a few doctor visits and tests, I discovered that I also had H-pylori, Candida, Gastritis and GERD. It is absolutely important for you to find out what else you have, for you to be able to fully heal without relapses. Finding out what else you have will allow you to face all your ailments at once, giving you a higher chance of beating all of them without a relapse. Each of the ailments you have support each other, so one can easily cause the return of another putting you on a relapse downward spiral that never ends.
3. Watch how I eat
The biggest mistake most people make with a healing diet is focusing too much on what they eat and put no effort on how or when they eat. The how is extremely important. The first time I did my SIBO treatment, I did not realize that how I eat affect my treatment. These are the things I have learned
Fruits an hour before food. If you are including fruits in your healing program, make sure you eat them an hour or even an hour and a half before your actual meal. This has to do with your stomach acid and digestion. If you eat your fruits too close to your meal, your stomach will stop the digestion of the fruits and the ingestion of its nutrients and begin digesting the food. What happens is that the fruits are left to ferment in the stomach and will be digested after food is digested. This will cause more symptoms and more problems for you
Chewing properly. Chewing is the first step to digestion, it allows your stomach to know how much acid to produce etc etc. I did not realize how much I practically swallowed my food whole. This was usually a result of eating when I am extremely hungry so I would eat too fast, rather I would swallow too fast without fully paying attention to how much chewing I am doing. When I started chewing properly I realized that my immediate post meal feeling of indigestion and stuck-food syndrome had reduced. I no longer felt like there were chunks of food stuck in different parts of my stomach. I also noticed reduced bloating.
Know when to/not to drink water.Drinking water too close to a meal or after a meal decreases the HCL in your stomach which affects how your food is digested.
4.Finish eating 1.5-2 hours before bed
I had no idea how important it was to sleep on a fairly empty stomach. I would get home late (about 7:30pm) by the time I eat my dinner, it would be about 8:30pm or 9pm and I would go to sleep at about 10 or 10:30pm. Granted, my stomach would still be fairly full and waking up was never fun. I would always wake up with increased symptoms, full body aches, fatigue, bloated, with lots of belches and a whole lot of discomfort. Then I learned that if I sleep with a full stomach, the food would not get digested and would simply stay in my system and possibly ferment, yuck. This would allow the bacteria to eat their fill and cause me more grief through the night.
5.Modified keto diet
The day I decided to restart my SIBO anti-microbial treatment, I had a terrible case of gastritis that led me to stop the anti-microbials and start paying more attention to my new symptoms. I could not eat because everything hurt which eventually led to a diet that consisted mainly of protein and seeds. Everything else caused me a lot of gastritis pain or lots of heartburn and bloating so I stopped eating everything except what my body could handle. After 2 weeks on this diet, everything changed. My gastritis disappeared, my constant bloating decreased, fatigue, exhaustion, nausea, extreme heartburn all decreased and changed how I continued to deal with my treatments.
These are a few of the things that changed how I face my SIBO and other ailments now. Granted, they are not perfect and there is no guarantee that these will work for you. Although I hope that sharing my story will help someone somewhere make a positive change towards their healing journey.